Data Partners

BLOG – Federated data networks and health technology assessment: Insights from an EHDEN study-a-thon in oncology

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In January, the National Institute for health and Care Excellence (NICE), University of Oxford and Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol) collaboratively held a study-a-thon in Barcelona. This event brought together Data Partners and oncology experts to utilise real-world data (RWD) for advancements in … Read more

BLOG – Data Saves Lives/EHDEN Patient Registries Bootcamp

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On 5-6 December 2023, I had the pleasure to be part of the third Data Saves Lives Ambassador Training Bootcamp in Brussels. EHDEN has been working closely with the European Patients’ Forum (EPF), an EHDEN Consortium member since the EHDEN project began in 2018, and this was an excellent opportunity to broaden our collaboration to … Read more

BLOG – FinOMOP consortium – a national data resource for improved research and health care management across Finland

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Mapping Finnish medical terms into the OMOP Common Data Model started as research collaboration in 2020. The exciting possibility to use numerous OHDSI-developed tools in cohort-building, case-control comparisons, visualisations, and analytics expanded quickly across all Finnish University Hospitals, University of Helsinki, and the Finnish Institute for Health and Welfare (THL). Due to the common need … Read more

DARWIN EU Open Call for Data Partners

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DARWIN EU®, the Data Analysis and Real World Interrogation Network, has accomplished its first year of establishment. Following the set-up of the DARWIN EU® Coordination Centre in February 2022, the first ten Data Partners were onboarded. We are proud that multiple data sources included in this first year have been mapped to the OMOP CDM … Read more

EHDEN adds 22 Data Partners from final Call #7 in 13 countries, 5 in collaboration with HDR UK, and overall network grows to 187, mapping ~830 million records to the OMOP Common Data Model

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The EHDEN Consortium is delighted with the response to our final Data Partner Call #7, and are pleased to announce 22 applicants have been selected from 13 countries to join the EHDEN network. This was our most competitive call to date, with 158 applications from 30 countries, meaning the Data Source Prioritisation Committee (DSPC) had … Read more

Protecting people while using their health data for research, a framework for understanding relative responsibilities and roles

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Introduction & why this paper was written A publication in Frontiers in Big Data was posted on 16 September, 2022: “A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks”. The authors set out a model of data systems that they … Read more

DARWIN EU® welcomes first data partners

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EMA has selected the first set of data partners to collaborate with DARWIN EU®, the Data Analysis and Real-World Interrogation Network. The data available to these partners will be used for studies to generate real-world evidence that will support scientific evaluations and regulatory decision making. Real-world evidence refers to information derived from analysis of real-world data, … Read more

Record response for our 7th and final open call for Data Partners!

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Between 12 October and 11 November, the EHDEN consortium held its seventh and final open call for Data Partners. We are delighted to announce that this call had an unprecedented number of responses, not only for the number of applications, 158, but also in terms of its wide geographic coverage with 30 European countries being … Read more

7th and FINAL Open Call for European Data Partners wishing to map source data to OMOP CDM and collaborative research – Portal Will Open Wednesday 12th Oct 2022

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EHDEN Launches the 7th, final, Open Call for European Data Partners aiming to receive funding and support in mapping their healthcare data to the OMOP common data model – with EUR1 million budget, in partnership with Health Data Research UK (supporting UK applicants), with up to GBP300,000. 3rd October 2022, Brussels, Belgium: The EHDEN Consortium … Read more