Welcome to our blog. This periodic blog on emerging themes related to the research use of health data invites project colleagues as well as acknowledged experts in their fields to share views on emerging themes in working with observational, or real-world data and evidence generation.

Our field is evolving rapidly with reference to data, methodology, tools and skills, and governance aspects. We therefore hope that our blog will serve as a forum for the project and colleagues to stimulate the wider debate. EHDEN encourages you to participate in this discussion, as collaboration is one of the cornerstones to optimising evidence generation for the 21st century, impacting positively on clinical care and patient outcomes.

The PIONEER study-a-thon: how EHDEN collaborates with its sister projects to generate medical evidence

The PIONEER study-a-thon: how EHDEN collaborates with its sister projects to generate medical evidence

No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
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BLOG – Real world education for real world research: continuing development, upskilling & collaboration

BLOG – Real world education for real world research: continuing development, upskilling & collaboration

No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
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BLOG – Avoiding the ‘not-invented-here’ syndrome will benefit all

BLOG – Avoiding the ‘not-invented-here’ syndrome will benefit all

No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
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BLOG – Keeping data closed enough for citizen security, but open enough for research

BLOG – Keeping data closed enough for citizen security, but open enough for research

The balance to be met is to keep data closed enough for citizen protection, but open enough for research. This means achieving an ethical balance, avoiding any harm to the patient, while doing societal good in research. The use of federated data networks, such as EHDEN, implicitly protect patient data by keeping data local, behind local firewalls and approval processes, inclusive of local consent requirements, whilst aggregating population-level information, not patient-level data from analysis. This is privacy by design.
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BLOG – The Patient Community, Engagement, and Insights around RWD/RWE

BLOG – The Patient Community, Engagement, and Insights around RWD/RWE

To become more of an equal partner, patients and patient groups need to be better versed in health data literacy to be able to meaningfully engage and contribute to shaping discussions, and the course of RWD/RWE.
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BLOG – Open standards for success in federated health data research

BLOG – Open standards for success in federated health data research

The overarching goal of the EHDEN project is to foster a thriving European community that better shares health data research, and in particular, to enable federated analyses of real- world healthcare data to ultimately improve patient treatment and outcomes. By definition, this is not something that the project partners can do alone: rather, we see our project as a catalyst to come together and build this with hundreds of other projects and organizations.
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