The EHDEN Consortium is pleased to announce that a total of 41 data partners have been selected in our latest open call for data partners. Having received a total of 55 eligible applications, these 41 applications were selected by the EHDEN Data Source Prioritisation Committee. Combined, the 41 selected data partners represent over 78 million … Read more
Antje Hottgenroth Lilly Introduce yourself and Lilly? Eli Lilly and Company is a global healthcare leader that unites caring with discovery to create medicines that make life better for people around the world. We were founded more than a century ago by a man committed to creating high-quality medicines that meet real needs, and today … Read more
The balance to be met is to keep data closed enough for citizen protection, but open enough for research. This means achieving an ethical balance, avoiding any harm to the patient, while doing societal good in research. The use of federated data networks, such as EHDEN, implicitly protect patient data by keeping data local, behind local firewalls and approval processes, inclusive of local consent requirements, whilst aggregating population-level information, not patient-level data from analysis. This is privacy by design.
The largest, most extensive global network study on background rates for adverse events of special interest identifies important age, sex and database differences that should inform future safety surveillance efforts. COVID vaccine surveillance efforts are a global priority, but safety monitoring for vaccines should not reflect a single global population. The largest international network study … Read more