We are excited to announce that EHDEN will be hosting a Symposium in Barcelona, Spain on 10 October 2024. As the EHDEN IHI 2 project formally ends and transitions to the EHDEN Foundation, the Symposium will celebrate our collective accomplishments, their impact on European healthcare – and look forward to how we will sustain them … Read more
In January, the National Institute for health and Care Excellence (NICE), University of Oxford and Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol) collaboratively held a study-a-thon in Barcelona. This event brought together Data Partners and oncology experts to utilise real-world data (RWD) for advancements in … Read more
Heavy menstrual bleeding (HMB) is a silent public health issue, impacting health and quality of life of millions of women across the globe. Diagnosis and treatment are often delayed, with up to 54% of women with HMB never receiving either. To address this, a two-day study-a-thon was held with eleven EHDEN Data Partners (DPs) in … Read more
Access to essential medicines is on the decline in Europe and this is having a harmful impact on patient health by increasing mortality, adverse events and therapy errors. A number of national and international initiatives have been undertaken to address these shortages, and since 2016, the European Medicines Agency (EMA) has published a public catalogue … Read more
Sustainable healthcare in Europe requires a better use of health data. For multiple stakeholders, including pharmaceutical organisations, real world evidence generation that is transparent, scalable and reproducible is vitally important. There is also an increasing need to understand patient wellbeing, disease, treatments, outcomes, new therapeutics and devices, in order to support patients, clinicians and to … Read more
In recent years, and much like we are witnessing across the rest of Europe, Italy has seen a significant surge in interest in OHDSI and the OMOP Common Data Model (CDM). As the R&D Manager at BIOMERIS, I’ve observed this trend across several hospitals and scientific organisations, including registries, as well as among various stakeholders … Read more
edenceHealth is an EHDEN small-to-medium enterprise (SME) based in Kontich (Antwerp), Belgium. We were among the first five SMEs to be certified by EHDEN in September 2019, and we have since had the opportunity to work with many EHDEN Data Partners. Assisting EHDEN Data Partners in mapping their data to the OMOP Common Data Model … Read more
OHDSI presents a transformative opportunity for how we teach informatics. I serve as the director of education for the Biomedical Informatics graduate training programmes at Johns Hopkins University School of Medicine and have incorporated OHDSI into our graduate training for the past three years. Biomedical Informatics is an applied multidisciplinary field on the use of … Read more
With a substantial proportion of the European population having had COVID-19 at some point in the previous years, long-term complications are becoming increasingly prevalent. Studies suggest that about one out of ten people do not fully recover from their acute disease, and present ongoing symptoms for three months or longer. In summer 2022, the EHDEN Evidence Generation Fund … Read more
The research process to analyse real world data that generates real world evidence is generally time-consuming, requiring considerable efforts and resources and planning over an extended period of time before its results can be shared, such as via publications. Meanwhile, patients, clinicians, and healthcare providers need evidence to support decision-making from individual treatment to populations … Read more