BLOG – Transforming Healthcare Through Education: What’s Next for the EHDEN Academy?

The EHDEN Academy is a free, online educational resource for professionals in the domains of real world data (RWD) and real world evidence (RWE). Originating from the collaborative framework of the EHDEN project and supported by the Innovative Medicines Initiative 2 (IMI2) joint undertaking, the EHDEN Academy operates on a global scale, currently engaging more … Read more

BLOG – Navigating the EHDEN Project as a PhD Student: Challenges, Learnings, and Triumphs

Starting any PhD can be a bit of a daunting experience. Even more so when you jump into a major international project like EHDEN. Many of the advantages of the project, such as the opportunities for collaboration, its inter-disciplinary nature, and ambitious goals contribute to a high-paced environment, which, as a fledgling researcher, can be … Read more

BLOG – New HTA Courses now available on EHDEN Academy

As part of our commitment to education, we at the EHDEN Academy are pleased to share our new HTA track of courses, curated by our partner NICE and developed by leading experts. These courses are designed to empower healthcare professionals, researchers, and policy-makers with the tools and knowledge needed to drive innovation and efficiency in … Read more

BLOG – Federated data networks and health technology assessment: Insights from an EHDEN study-a-thon in oncology

In January, the National Institute for health and Care Excellence (NICE), University of Oxford and Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol) collaboratively held a study-a-thon in Barcelona. This event brought together Data Partners and oncology experts to utilise real-world data (RWD) for advancements in … Read more

BLOG – Data Saves Lives/EHDEN Patient Registries Bootcamp

On 5-6 December 2023, I had the pleasure to be part of the third Data Saves Lives Ambassador Training Bootcamp in Brussels. EHDEN has been working closely with the European Patients’ Forum (EPF), an EHDEN Consortium member since the EHDEN project began in 2018, and this was an excellent opportunity to broaden our collaboration to … Read more

BLOG – FinOMOP consortium – a national data resource for improved research and health care management across Finland

Mapping Finnish medical terms into the OMOP Common Data Model started as research collaboration in 2020. The exciting possibility to use numerous OHDSI-developed tools in cohort-building, case-control comparisons, visualisations, and analytics expanded quickly across all Finnish University Hospitals, University of Helsinki, and the Finnish Institute for Health and Welfare (THL). Due to the common need … Read more

BLOG – Getting to the root of an alopecia areata EHDEN study-a-thon

Sustainable healthcare in Europe requires a better use of health data. For multiple stakeholders, including pharmaceutical organisations, real world evidence generation that is transparent, scalable and reproducible is vitally important. There is also an increasing need to understand patient wellbeing, disease, treatments, outcomes, new therapeutics and devices, in order to support patients, clinicians and to … Read more

BLOG – Italy’s OHDSI node moving full speed ahead

In recent years, and much like we are witnessing across the rest of Europe, Italy has seen a significant surge in interest in OHDSI and the OMOP Common Data Model (CDM). As the R&D Manager at BIOMERIS, I’ve observed this trend across several hospitals and scientific organisations, including registries, as well as among various stakeholders … Read more

BLOG – LAISDAR: Improving COVID-19 Care in Rwanda

edenceHealth is an EHDEN small-to-medium enterprise (SME) based in Kontich (Antwerp), Belgium. We were among the first five SMEs to be certified by EHDEN in September 2019, and we have since had the opportunity to work with many EHDEN Data Partners. Assisting EHDEN Data Partners in mapping their data to the OMOP Common Data Model … Read more

BLOG – Leveraging OHDSI Tools and Data

OHDSI presents a transformative opportunity for how we teach informatics.  I serve as the director of education for the Biomedical Informatics graduate training programmes at Johns Hopkins University School of Medicine and have incorporated OHDSI into our graduate training for the past three years.  Biomedical Informatics is an applied multidisciplinary field on the use of … Read more