Podcasts

Voice of EHDEN Episode #4 - Improving the quality of cancer care for this and future generations: a conversation with James N'Dow about the EHDEN/PIONEER/OHDSI prostate cancer study-a-thon

In this episode, we dive into a very important healthcare topic: how collaborations with patients, clinicians and professional medical societies can help us generate evidence from observational data to advance cancer care. We discuss the joint EHDEN / PIONEER / OHDSI study-a-thon about prostate cancer earlier this year with our guest, James N'Dow, Adjunct Secretary General for Education at European Association of Urology and Professor of Urology at the University of Aberdeen, Scotland, and also PIONEER Academic Coordinator. We also touch upon the relationship between RCTs (Randomised Controlled Trials), observational studies, real-world outcomes and how important they are to inform clinical guidelines and improving the quality and experience of cancer care for patients.

Listen to the episode here or via your preferred podcast app.

Voice of EHDEN Episode #3 - Patient involvement with Open Science - a conversation with the European Patient Forum

In this episode, Gözde Susuzlu, Project Coordinator, and Estefania Cordero, Project Communications Officer, at the European Patients Forum discuss the rise of patient involvement in healthcare research, the need for support and digital literacy, and the role of such programmes as EHDEN. They explore the DataSavesLives initiative and the wider European Health Data Space (EHDS) development, finishing with the insights derived from the recent EPF survey conducted on the impact of the COVID-19 pandemic on patients and patient organisation.

The EPF 2021 Congress will be held virtually 26-29 October, more information here.

Listen to the episode here or via your preferred podcast app.

Voice of EHDEN Episode #2 - How open science is changing medical research in the era of COVID-19

In this episode, Dani Prieto-Alhambra, Professor of Pharmaco- and Device Epidemiology University of Oxford and academic lead for the work package in EHDEN focusing on the generation of real world evidence, talks about COVID-19, and how new, open science ways of working such as study-a-thons are influencing medical research.

Listen to the episode here or via your preferred podcast app.

European Patients' Podcast - All about EHDEN Mini Series, Part 3: Data Privacy & EHDEN Academy 101 Course Launch

Part 3 of a 3 part series on the European Health Data Evidence Network, by the European Patient Forum (EPF), an EHDEN Partner, for the wider patient community and patient groups with an interest in health data.

More interested in the topic of health data? Do you want to understand more about health data governance, and how real world insights are harnessed at scale?

In this episode, we are joined by Nigel Hughes, Scientific Director at Janssen Research and Development, and the EHDEN Project Lead.

Nige helps us to understand key concepts around data privacy, and what comes next for the EHDEN project in education, including a special announcement regarding the EHDEN Academy

Listen to the episode here or via your preferred podcast app.

European Patients' Podcast - All about EHDEN Mini Series, Part 2: Data Partners & Evidence Generation

Part 2 of a 3 part series on the European Health Data Evidence Network, by the European Patient Forum (EPF), an EHDEN Partner, for the wider patient community and patient groups with an interest in health data.

Are you curious to understand the journey from health data to health outcomes?

In this episode, we are joined by Daniel Prieto Alhambra, an expert in Real World Evidence and Open Science. He is Professor of Pharmaco- and Device Epidemiology at the Oxford University, and the Research Coordinator of the EHDEN project.

Dani helps us understand just what is done with health data to turn into meaningful outcomes, and why EHDEN needs the support of data partners to make this happen.

Listen to the episode here or via your preferred podcast app.

European Patients' Podcast - All about EHDEN Mini Series, Part 1: Intro to EHDEN

Part 1 of a 3 part series on the European Health Data Evidence Network, by the European Patient Forum (EPF), an EHDEN Partner, for the wider patient community and patient groups with an interest in health data.

Are you curious to learn the basics of health data? How we use health data today, and how to maximise its potential for tomorrow?

In this episode, we are joined by Peter Rijnbeek, Associate Professor of Health Data Science at the Department of Medical Informatics of the Erasmus MC, The Netherlands, and EHDEN project coordinator.

Peter helps us understand some basic health data concepts central to EHDEN , and helps us to frame why a project like EHDEN is crucial to harnessing the insights and evidence available from real-world clinical data at scale.

Listen to the episode here or via your preferred podcast app.

Voice of EHDEN Episode #1 - Global open science and observational research: a conversation with international thought leader, Patrick Ryan, OHDSI & Janssen

In our first episode of season one, Patrick Ryan, PhD, VP Observational Health Data Analytics, Janssen R&D, Assistant Professor, Adjunct; Department of Biomedical Informatics, Columbia University Medical Center, and founding member of Observational Health Data Sciences & Informatics (OHDSI) joins us to discuss the last decade of OHDSI's and now EHDEN's methodological and tool development.

We expand into COVID-19 and the pandemic's impact on observational research, and conclude by discussing OHDSI's educational remit and the need for upskilling in the research community.

The Global OHDSI Symposium is 12-15th September, 2021 - more information via OHDSI.org.

Listen to the episode here or via your preferred podcast app.

New Voice of EHDEN Podcast!

Watch this space for a new podcast series with experts in and external to the EHDEN project discussing key aspects of working with real world data in large scale observational research, network studies and building 21st century architectures.

Over the coming months you will hear from international thought leaders, EHDEN Partners and collaborators on their experiences and perspectives and we hope that this will be both informative and inspirational.

The Voice of EHDEN will be available here, via Anchor, Spotify, Apple Podcasts, Google Podcasts and many other podcast distributors.

Coming soon....listen to the trailer here.

Daniel Prieto Alhambra, All about EHDEN, Part 2: Data Partners (April 2021)

Part 2 of a 2 part series on EHDEN - Are you curious to understand the journey from health data to health outcomes?

In this episode, we are joined by Daniel Prieto Alhambra, an expert in Real World Evidence and Open Science. He is Professor of Pharmaco- and Device Epidemiology at the Oxford University, and the Research Coordinator of the EHDEN project. Daniel helps us understand just what is done with health data to turn into meaningful outcomes, and why EHDEN needs the support of data partners to make this happen.

Peter Rijnbeek, All about EHDEN, Part 1: Intro to EHDEN (March 2021)

Part 1 of a 2 part series on EHDEN - Are you curious to learn the basics of health data? How we use health data today, and how to maximise its potential for tomorrow? In this episode, we are joined by Peter Rijnbeek, Associate Professor of Health Data Science at the Department of Medical Informatics of the Erasmus MC, The Netherlands, and EHDEN project coordinator.

Peter helps us understand some basic health data concepts central to EHDEN , and helps us to frame why a project like EHDEN is crucial to harnessing the insights and evidence available from real-world clinical data at scale.

Kees van Bochove, A Hyve in EHDEN (October 2020)

Kees van Bochove founded The Hyve, based in Utrecht, to facilitate open source software development, enable open science by developing and FAIRifying data in life sciences. Their platform and expertise are a driving force behind the success of the EHDEN project.

In this podcast we discuss how EHDEN was able to produce a high-quality hydroxychloroquine peer review study in only 4 days, and how the platform will be able to assist with European healthcare decision making in the future. It also outlines many of the core issues to be discussed in a webinar series as part of EHDEN’s annual General Assembly and Road Show.

 

NICE’s Jacoline Bouvy – Using EHDEN to Determine Value for Patients (October 2020)

IMI’s EHDEN is developing a federated data network at scale across Europe, to reduce the time to provide key answers to health research in the real world. The challenge is how can a federated data model help HTAs determine value for patients and healthcare systems?

In this podcast we discuss these challenges with Jacoline Bouvy (National Institute for Health and Care Excellence, NICE), who co-leads EHDEN’s work package 2, focused on outcome driven healthcare. It will outline many of the core challenges that HTA’s face harnessing federated datasets, and outline several issues to be discussed in a multi-stakeholder webinar to be held on October 22nd.

 

Matt Wiener - EHDEN’s SME Marketplace and Harnessing Informatics (October 2020)

Matt Wiener co-leads the development of EHDEN’s SME Marketplace, training and certifying the project’s growing international network of SMEs that are leveraging observational data locally. The SME network is the EHDEN project’s engine, supplying the local knowledge required to convert the observational data available in many unique EU databases into a common data model so they are usable within a federated network.

In this podcast we discuss the current gulf that exists in medical practice between doctors and quants, and how this situation can be solved in the future. We also discuss the many challenges to harnessing observational data are not, in fact, technical, but political. EHDEN can serve as a test-bed to demonstrate the value of RWE to help remove the barriers that current exist to access health records and apply effectiveness in decision making.

 

Nigel Hughes, on a quest to find big data's garden of EHDEN (2019)

Nigel Hughes collaborates with the EFPIA Digital Strategic Governing Group, and he is also co-lead of Big Data for Better Outcome’s €30 million flagship consortium, the European Health Data & Evidence Network, or EHDEN. Nigel has long been at the forefront of developing the needed tools and infrastructure to harness health data, through his involvement with previous IMI projects such as EMIF, as well as supporting open source data sharing platforms such as OMOP and OHDSI.

Nigel brings his decades of experience in nursing and directing NGOs in AIDS and Hepatitis C to IMI's EHDEN. His unique perspective on the need for global collaboration to address societal challenges like Alzheimer's disease is well-reasoned and refreshing in today's fractured and divisive political climate.