The EHDEN project, which launched in November 2018, wrapped-up its initial phase at a two-day event on 9/10 October in Barcelona. The overarching theme of Day 1 was “celebration” in which a large group of the EHDEN Community consisting of Consortium Members, SMEs, and Data Partners came together to look back at EHDEN’s many … Read more
We are excited to announce that EHDEN will be hosting a Symposium in Barcelona, Spain on 10 October 2024. As the EHDEN IHI 2 project formally ends and transitions to the EHDEN Foundation, the Symposium will celebrate our collective accomplishments, their impact on European healthcare – and look forward to how we will sustain them … Read more
The EHDEN Academy is a free, online educational resource for professionals in the domains of real world data (RWD) and real world evidence (RWE). Originating from the collaborative framework of the EHDEN project and supported by the Innovative Medicines Initiative 2 (IMI2) joint undertaking, the EHDEN Academy operates on a global scale, currently engaging more … Read more
Starting any PhD can be a bit of a daunting experience. Even more so when you jump into a major international project like EHDEN. Many of the advantages of the project, such as the opportunities for collaboration, its inter-disciplinary nature, and ambitious goals contribute to a high-paced environment, which, as a fledgling researcher, can be … Read more
As part of our commitment to education, we at the EHDEN Academy are pleased to share our new HTA track of courses, curated by our partner NICE and developed by leading experts. These courses are designed to empower healthcare professionals, researchers, and policy-makers with the tools and knowledge needed to drive innovation and efficiency in … Read more
In January, the National Institute for health and Care Excellence (NICE), University of Oxford and Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol) collaboratively held a study-a-thon in Barcelona. This event brought together Data Partners and oncology experts to utilise real-world data (RWD) for advancements in … Read more
Heavy menstrual bleeding (HMB) is a silent public health issue, impacting health and quality of life of millions of women across the globe. Diagnosis and treatment are often delayed, with up to 54% of women with HMB never receiving either. To address this, a two-day study-a-thon was held with eleven EHDEN Data Partners (DPs) in … Read more
On 5-6 December 2023, I had the pleasure to be part of the third Data Saves Lives Ambassador Training Bootcamp in Brussels. EHDEN has been working closely with the European Patients’ Forum (EPF), an EHDEN Consortium member since the EHDEN project began in 2018, and this was an excellent opportunity to broaden our collaboration to … Read more
Access to essential medicines is on the decline in Europe and this is having a harmful impact on patient health by increasing mortality, adverse events and therapy errors. A number of national and international initiatives have been undertaken to address these shortages, and since 2016, the European Medicines Agency (EMA) has published a public catalogue … Read more
Mapping Finnish medical terms into the OMOP Common Data Model started as research collaboration in 2020. The exciting possibility to use numerous OHDSI-developed tools in cohort-building, case-control comparisons, visualisations, and analytics expanded quickly across all Finnish University Hospitals, University of Helsinki, and the Finnish Institute for Health and Welfare (THL). Due to the common need … Read more