Month: December 2022

EHDEN adds 22 Data Partners from final Call #7 in 13 countries, 5 in collaboration with HDR UK, and overall network grows to 187, mapping ~830 million records to the OMOP Common Data Model

by

The EHDEN Consortium is delighted with the response to our final Data Partner Call #7, and are pleased to announce 22 applicants have been selected from 13 countries to join the EHDEN network. This was our most competitive call to date, with 158 applications from 30 countries, meaning the Data Source Prioritisation Committee (DSPC) had … Read more

Paper published in JAMIA Open journal on evaluating a novel approach to stimulate open science collaborations

by

The research process to analyse real world data that generates real world evidence is generally time-consuming, requiring considerable efforts and resources and planning over an extended period of time before its results can be shared, such as via publications. Meanwhile, patients, clinicians, and healthcare providers need evidence to support decision-making from individual treatment to populations … Read more

Protecting people while using their health data for research, a framework for understanding relative responsibilities and roles

by

Introduction & why this paper was written A publication in Frontiers in Big Data was posted on 16 September, 2022: “A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks”. The authors set out a model of data systems that they … Read more