On 5-6 December 2023, I had the pleasure to be part of the third Data Saves Lives Ambassador Training Bootcamp in Brussels. EHDEN has been working closely with the European Patients’ Forum (EPF), an EHDEN Consortium member since the EHDEN project began in 2018, and this was an excellent opportunity to broaden our collaboration to … Read more
To become more of an equal partner, patients and patient groups need to be better versed in health data literacy to be able to meaningfully engage and contribute to shaping discussions, and the course of RWD/RWE.
Part 2 of a 3 part series on the European Health Data Evidence Network, or EHDEN for short. Are you curious to understand the journey from health data to health outcomes? In this episode, we are joined by Daniel Prieto Alhambra, an expert in Real World Evidence and Open Science. He is Professor of Pharmaco- … Read more
Part 1 of a 3 part series on the European Health Data Evidence Network, or EHDEN for short. Are you curious to learn the basics of health data? How we use health data today, and how to maximise its potential for tomorrow? In this episode, we are joined by Peter Rijnbeek, Associate Professor of Health … Read more
Brussels, November 2019 – The European Patients’ Forum (EPF), the European Institute for Innovation through Health Data (i~HD) and other key players from the health data communities launched the ‘Data Saves Lives’ Initiative at the EPF’s Congress in Brussels on the 12 November 2019. Data Saves Lives is a multi-stakeholder initiative that aims to raise … Read more