The use of health data has had an interesting evolution. When I look back to the mid-1980s when I was in general practice in London, and first became aware of the important role computers can play in clinical care, there was initially a lot of resistance, negativity, and fierce debate about the ethics of sharing … Read more
On 20 October, EHDEN joined a group of 29 diverse and representative European stakeholders in welcoming the European Commission’s proposal on the European Health Data Space (EHDS). The stakeholders, which include medical professional and research organisations, patient representatives, industry associations and data collaborations strongly support the aims of the EHDS as proposed by the European … Read more
COVID-19 was declared a pandemic by the WHO in March of 2020 and EHDEN was formally launched in November 2018. With a solid foundation of Data Partners in place by early 2020, and since then, EHDEN has been collaborating with OHDSI (Observational Health Data Science and Informatics), our growing base of Data Partners, and other … Read more
5th October 2022, Brussels, Belgium: Working with real word data is not just about the data itself, nor only technical, methodological, or platform aspects, but also governance, ethical and legal compliance. Ensuring citizen or patient protection, privacy and meeting legal requirements are critical elements, requiring trust, trustworthiness and reliance on appropriate systems and appropriate involvement … Read more
See also the accompanying article in Uppsala Reports here. The week of 5 September had more than thirty colleagues from the Uppsala Monitoring Centre (UMC), EHDEN, DARWIN EU, and EHDEN Data Partners come together in Uppsala, Sweden to take part in the UMC/EHDEN pharmacovigilance evidence-a-thon. The specific objective of this IMI EHDEN-sponsored event was to … Read more
EHDEN Launches the 7th, final, Open Call for European Data Partners aiming to receive funding and support in mapping their healthcare data to the OMOP common data model – with EUR1 million budget, in partnership with Health Data Research UK (supporting UK applicants), with up to GBP300,000. 3rd October 2022, Brussels, Belgium: The EHDEN Consortium … Read more