evidence

BLOG – Federated data networks and health technology assessment: Insights from an EHDEN study-a-thon in oncology

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In January, the National Institute for health and Care Excellence (NICE), University of Oxford and Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol) collaboratively held a study-a-thon in Barcelona. This event brought together Data Partners and oncology experts to utilise real-world data (RWD) for advancements in … Read more

Paper published in JAMIA Open journal on evaluating a novel approach to stimulate open science collaborations

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The research process to analyse real world data that generates real world evidence is generally time-consuming, requiring considerable efforts and resources and planning over an extended period of time before its results can be shared, such as via publications. Meanwhile, patients, clinicians, and healthcare providers need evidence to support decision-making from individual treatment to populations … Read more

EHDEN/OHDSI Feature in COVID-19 Real-World Evidence Primer

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COVID-19 was declared a pandemic by the WHO in March of 2020 and EHDEN was formally launched in November 2018. With a solid foundation of Data Partners in place by early 2020, and since then, EHDEN has been collaborating with OHDSI (Observational Health Data Science and Informatics), our growing base of Data Partners, and other … Read more

EHDEN Research Coordinator receives ISPE Special Award for Epidemiology and Public Health

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Brussels, Belgium, 5th September 2022: We are delighted to announce and celebrate the special award from the International Society of Pharmacoepidemiology (ISPE) for recognisable and impactful contributions to public health during the COVID-19 pandemic awarded to Prof Dani Prieto-Alhambra, EHDEN’s Research Coordinator, Professor of Pharmaco and Device Epidemiology, NDORMS, University of Oxford, and Professor, Real … Read more

BLOG – Real World Data’s Expanding Role in Conducting Research & Lessons Learned from COVID-19

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My team and I are very pleased to see the COVID-19 virus waning thanks to vaccines (and mutations), and that we’re now in a much better place. However, it’s nevertheless still with us and there’s necessarily great interest in the long-term consequences of long COVID, i.e., infection/re-infection, infection with different variants, infection with people vaccinated, … Read more

BLOG – Ensuring a successful EHDEN future

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In the EHDEN project, sustainability and outreach were inherent in its design in Work Package 6 (WP6) right from the very beginning, which differentiated it from many other IMI projects. We always considered EHDEN to be a start-up within IMI with a post-project future, rather than having a project mentality with a start, middle and … Read more

BLOG – An Inside Look at Open Science Community Management

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Open science is playing an increasingly important role in our rapidly changing world. Open science, as defined by the OECD, makes the primary outputs of publicly funded research results – publications and research data – publicly accessible in digital format with no or minimal restriction. It’s also about ensuring the principles of openness extend to … Read more

BLOG – E-thons: paving the way for generating faster real world evidence

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With the European Health Evidence & Data Network (EHDEN) now in its third year, efforts are more than ever being focused on the second “E” – generating evidence. After its first successful “evidence-a-thon” or e-thon held in July 2021, a second e-thon with five EHDEN Data Partners (DPs) – CPRD, ULSM, FIIBAP, MEDAMAN and IU … Read more

OHDSI Kicks Off International Collaborative Effort to Generate Real-World Evidence on COVID-19 with Virtual Study-a-thon Event

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The Observational Health Data Sciences and Informatics (OHDSI) international community will host a COVID-19 virtual study-a-thon this week (March 26-29) to inform healthcare decision-making in response to the current global pandemic. More than 290 people from 29 different countries have registered for the four-day online event, which will be led by researchers from Oxford University, … Read more