BLOG – Getting to the root of an alopecia areata EHDEN study-a-thon

Sustainable healthcare in Europe requires a better use of health data. For multiple stakeholders, including pharmaceutical organisations, real world evidence generation that is transparent, scalable and reproducible is vitally important. There is also an increasing need to understand patient wellbeing, disease, treatments, outcomes, new therapeutics and devices, in order to support patients, clinicians and to … Read more

OHDSI national nodes: helping to strengthen research collaboration across Europe Interview with Renske Los, Erasmus Medical Center, Rotterdam

  Renske Los is assistant professor at the department of Medical Informatics, Erasmus Medical Center in Rotterdam, the Netherlands, and co-lead of OHDSI NL. Together with Prof. Peter Rijnbeek she helps onboard new national nodes to the OHDSI Europe chapter. How do national nodes evolve and why are they important? Since 2021, national nodes have … Read more

BLOG – Italy’s OHDSI node moving full speed ahead

In recent years, and much like we are witnessing across the rest of Europe, Italy has seen a significant surge in interest in OHDSI and the OMOP Common Data Model (CDM). As the R&D Manager at BIOMERIS, I’ve observed this trend across several hospitals and scientific organisations, including registries, as well as among various stakeholders … Read more

BLOG – LAISDAR: Improving COVID-19 Care in Rwanda

edenceHealth is an EHDEN small-to-medium enterprise (SME) based in Kontich (Antwerp), Belgium. We were among the first five SMEs to be certified by EHDEN in September 2019, and we have since had the opportunity to work with many EHDEN Data Partners. Assisting EHDEN Data Partners in mapping their data to the OMOP Common Data Model … Read more

BLOG – Leveraging OHDSI Tools and Data

OHDSI presents a transformative opportunity for how we teach informatics.  I serve as the director of education for the Biomedical Informatics graduate training programmes at Johns Hopkins University School of Medicine and have incorporated OHDSI into our graduate training for the past three years.  Biomedical Informatics is an applied multidisciplinary field on the use of … Read more

BLOG – EHDEN “Long COVID and PASC” study-a-thon

With a substantial proportion of the European population having had COVID-19 at some point in the previous years, long-term complications are becoming increasingly prevalent. Studies suggest that about one out of ten people do not fully recover from their acute disease, and present ongoing symptoms for three months or longer. In summer 2022, the EHDEN Evidence Generation Fund … Read more

Annual Report Year 4 Now Available!

  As EHDEN moves ahead in its fifth and final year as an IMI project, its Year 4 Annual Report is now available. The EHDEN team, and on behalf of the Consortium, would like to deeply thank everyone that contributed to our success. Many milestones were met or eclipsed over the course of the year. … Read more

BLOG – Concentric Circles View (CCV) – What does this mean for how we protect patients when using their health data

In September 2022, Frontiers in Big Data published the paper “A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks”. While this title may sound daunting, the concept is designed to break down complex health data principles that are important for … Read more

EHDEN Academy launches new course: Applied Cost-Effectiveness Modeling with R

  The EHDEN Academy, in collaboration with our guest lecturer Jeroen Jansen (Associate Professor at the Department of Clinical Pharmacy, University of California – San Francisco) and NICE (National Institute for Health and Care Excellence), is thrilled to announce the launch of our new course: Applied Cost-Effectiveness Modeling with R. The course aims to provide … Read more