The EHDEN project, which launched in November 2018, wrapped-up its initial phase at a two-day event on 9/10 October in Barcelona. The overarching theme of Day 1 was “celebration” in which a large group of the EHDEN Community consisting of Consortium Members, SMEs, and Data Partners came together to look back at EHDEN’s many accomplishments. A public Symposium, which was held on Day 2, covered the full spectrum of EHDEN’s journey, its impact on the generation of real-world evidence, and charted its future as the EHDEN Foundation.
To mark the occasion, a commemorative booklet was produced EHDEN: Our Journey which captures the successes EHDEN has realised in fulfilling its mission to provide a new paradigm for the discovery and analysis of health data in Europe, by building a large scale, sustainable federated network of data sources standardised to the OMOP Common Data Model.
EHDEN Project Leads Peter Rijnbeek and Patrick Ryan kicking off Day 1
Carlos Diaz, WP 6 & 7 Co-Lead presenting on the EHDEN Foundation
This includes achievements such as:
- Certifying 64 SMEs from 22 countries to help Data Partners map their data to the OMOP CDM.
- Establishing a federated network of 187 Data Partners from 29 countries across Europe.
- Designing a range of standardised analytics and new tools to assess Data Partner readiness to conduct research.
- Launching the EHDEN Portal – a gateway to the EHDEN ecosystem with a Database Catalogue of currently: 210 databases, >359M patient records, and 1,300 registered researchers.
- Generating >70 peer-reviewed publications on methodological research and impactful clinical studies.
- Collaborating with multiple partners in an on-going study to safeguard against a critical medicines’ shortage – the largest-ever observational database research study.
- Creating the EHDEN Academy, whose 24-course curriculum is a valuable resource used by >5,000 active learners from >100 countries around the world.
- Ensuring the sustainability of EHDEN’s successes via the EHDEN Foundation.
WP1 Co-Lead Dani Prieto-Alhambra and Oxford's Theresa Burkhard shared details on EHDEN's ongoing study to safeguard against a critical medicines' shortage
EHDEN Community Manager, Montse Camprubi leading a panel discussion on EHDEN and real-world data
“It was fantastic to close the EHDEN project phase with so many talented people that have an impressive drive to continue our impactful journey in Europe. I am proud we have put everything in place to further operationalise and expand EHDEN’s activities for many years to come.”
Peter Rijnbeek
“EHDEN showcased what is possible when industry, academia, and government collaborate with a shared mission and a sense of purpose that together we can use real-world data to generate reliable and actionable evidence to improve the lives of patients across Europe and the world.”
Patrick Ryan
“EHDEN has underpinned and enabled DARWIN EU, which could not have happened in its current form without EHDEN.”
Peter Arlett
“Having a transformational ambition is really, really important - and EHDEN has demonstrated this value.”
Niklas Blomberg
EMA's Peter Arlett on EHDEN's impact on regulatory decision-making
IHI Executive Director, Niklas Blomberg covered EHDEN's impact on IHI
Members of the EHDEN Community gave their one-word answer to what comes to mind when thinking about their EHDEN experiences.
This short video montage offers a snapshot of the 2-day event.
Real-world training panel discussion led by Henrik John, Erasmus Medical Center
