EHDEN

EHDEN adds 22 Data Partners from final Call #7 in 13 countries, 5 in collaboration with HDR UK, and overall network grows to 187, mapping ~830 million records to the OMOP Common Data Model

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The EHDEN Consortium is delighted with the response to our final Data Partner Call #7, and are pleased to announce 22 applicants have been selected from 13 countries to join the EHDEN network. This was our most competitive call to date, with 158 applications from 30 countries, meaning the Data Source Prioritisation Committee (DSPC) had … Read more

Protecting people while using their health data for research, a framework for understanding relative responsibilities and roles

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Introduction & why this paper was written A publication in Frontiers in Big Data was posted on 16 September, 2022: “A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks”. The authors set out a model of data systems that they … Read more

DARWIN EU® welcomes first data partners

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EMA has selected the first set of data partners to collaborate with DARWIN EU®, the Data Analysis and Real-World Interrogation Network. The data available to these partners will be used for studies to generate real-world evidence that will support scientific evaluations and regulatory decision making. Real-world evidence refers to information derived from analysis of real-world data, … Read more

OHDSI Global Symposium, Rockville, Maryland US, 14-16th October 2022

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EHDEN colleagues were delighted to participate and present at this year’s OHDSI Symposium, the first in person following the COVID-19 lockdowns. With more than 400 colleagues from around the world, the three days were split into a whole day conference, an all-day tutorial and then work group meetings and exposure of these to OHDSI colleagues. … Read more

EHDEN joins stakeholders’ consensus response to the proposed European Health Data Space

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On 20 October, EHDEN joined a group of 29 diverse and representative European stakeholders in welcoming the European Commission’s proposal on the European Health Data Space (EHDS). The stakeholders, which include medical professional and research organisations, patient representatives, industry associations and data collaborations strongly support the aims of the EHDS as proposed by the European … Read more

EHDEN Ethical Advisory Board (EAB), and colleagues, publish new conceptual, socio-technical framework supporting research via federated data networks: Concentric Circles View

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5th October 2022, Brussels, Belgium: Working with real word data is not just about the data itself, nor only technical, methodological, or platform aspects, but also governance, ethical and legal compliance. Ensuring citizen or patient protection, privacy and meeting legal requirements are critical elements, requiring trust, trustworthiness and reliance on appropriate systems and appropriate involvement … Read more

BLOG – GetReal: Leveraging its history to facilitate a collaborative approach for the use of RWE in Europe

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Before I share details about GetReal, let me first outline our evolution. The GetReal Institute was established as an independent and sustainable continuation of two Innovative Medicines Initiative (IMI) projects. IMI GetReal ran between 2013 and 2017 with a focus on bringing together stakeholder groups to develop new tools and resources for incorporating real world … Read more

Series 1 EHDEN Academy Courses for Non-Experts Complete

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  With module 3 now posted, EHDEN (European Health Data & Evidence Network), together with the European Patients’ Forum, has completed its initial series of easy-to-understand, animated courses for non-experts as part of the EHDEN Academy course offering. These three introductory courses are designed to familiarise non-experts with the basics of health data in terms … Read more

EHDEN Research Coordinator receives ISPE Special Award for Epidemiology and Public Health

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Brussels, Belgium, 5th September 2022: We are delighted to announce and celebrate the special award from the International Society of Pharmacoepidemiology (ISPE) for recognisable and impactful contributions to public health during the COVID-19 pandemic awarded to Prof Dani Prieto-Alhambra, EHDEN’s Research Coordinator, Professor of Pharmaco and Device Epidemiology, NDORMS, University of Oxford, and Professor, Real … Read more