PIONEER

EHDEN Ethical Advisory Board (EAB), and colleagues, publish new conceptual, socio-technical framework supporting research via federated data networks: Concentric Circles View

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5th October 2022, Brussels, Belgium: Working with real word data is not just about the data itself, nor only technical, methodological, or platform aspects, but also governance, ethical and legal compliance. Ensuring citizen or patient protection, privacy and meeting legal requirements are critical elements, requiring trust, trustworthiness and reliance on appropriate systems and appropriate involvement … Read more

PIONEER collaborates with EHDEN & OHDSI on a Prostate Cancer Study-a-thon

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Recent study-a-thon investigates the natural history and outcomes of prostate cancer patients managed with watchful waiting. A conservative management option for prostate cancer patients with a life expectancy of less than 10 years at time of diagnosis. The patient’s disease is ‘watched’ for development of local or systemic progression until they require palliative treatment (care … Read more

Uncovering the natural history of prostate cancer in data from millions of patient lives across the globe

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PIONEER, EHDEN and OHDSI join forces to study the clinical management of prostate cancer in a virtual studyathon Prostate cancer is a major disease affecting more than 2 million men in Europe alone, and has now become the most common cancer in men. Clinical management of this complex disease is challenging and involves difficult trade-offs, … Read more