EHDEN welcomes Roche to its Consortium

Brussels, Belgium, 28 March 2023: EHDEN (European Health Data & Evidence Network) is delighted to announce that Roche has become a partner of the EHDEN Consortium. They now join the 11 public partners, and 13 industry partners, adding their expertise, resources, and support in creating an ecosystem for working with real-world data across Europe. The private-public … Read more

Professor Peter Rijnbeek, EHDEN Coordinator, gives his inaugural lecture accepting his full professorship, highlighting with RWD/RWE, scale matters

EHDEN is extremely proud of our Coordinator, Prof Peter Rijnbeek, who gave his inaugural lecture to publicly accept his appointment as a full Professor of Medical Informatics, at Erasmus MC Faculty of Erasmus University Rotterdam on March 3rd. This is a delightful tradition in The Netherlands for a new Professor to outline his/her scientific view … Read more

EHDEN not-for-profit and Lundbeck collaborate on first research programme, in Neuroscience

Brussels, Belgium, 21st of February 2023:  The European Health Data and Evidence Network (EHDEN) and Lundbeck announce they have begun formative stages of neuroscience research with the EHDEN network and potential partners, including other Pharma companies. As an Innovative Medicines Initiative (IMI) project, EHDEN will reach end-of-its project phase in April 2024. To ensure EHDEN’s … Read more

EHDEN Academy Courses for Non-Experts Extended to 4th Module on Patient Reported Outcomes

With module 4 now posted, EHDEN (European Health Data & Evidence Network), and IMI H20 (Health Outcomes Observatory) launched their lay-language course collaboration on Patient Reported Outcomes. This is the 4th course in the series of introductory-level courses on the EHDEN Academy, which have been co-produced in partnership with the European Patients’ Forum. This introductory … Read more

EHDEN Academy used in 100 countries worldwide in all regions, training thousands to date

We are delighted that the EHDEN Academy has reached the remarkable milestone of course users in 100 countries, a rapid expansion since its launch as part of the IMI EHDEN project in April 2020. With almost 3,500 course enrollees since launch, this is an excellent start and foundation to the Academy and our vision of … Read more

EHDEN adds 22 Data Partners from final Call #7 in 13 countries, 5 in collaboration with HDR UK, and overall network grows to 187, mapping ~830 million records to the OMOP Common Data Model

The EHDEN Consortium is delighted with the response to our final Data Partner Call #7, and are pleased to announce 22 applicants have been selected from 13 countries to join the EHDEN network. This was our most competitive call to date, with 158 applications from 30 countries, meaning the Data Source Prioritisation Committee (DSPC) had … Read more

Paper published in JAMIA Open journal on evaluating a novel approach to stimulate open science collaborations

The research process to analyse real world data that generates real world evidence is generally time-consuming, requiring considerable efforts and resources and planning over an extended period of time before its results can be shared, such as via publications. Meanwhile, patients, clinicians, and healthcare providers need evidence to support decision-making from individual treatment to populations … Read more

DARWIN EU® welcomes first data partners

EMA has selected the first set of data partners to collaborate with DARWIN EU®, the Data Analysis and Real-World Interrogation Network. The data available to these partners will be used for studies to generate real-world evidence that will support scientific evaluations and regulatory decision making. Real-world evidence refers to information derived from analysis of real-world data, … Read more

EHDEN, NICE and Health Technology Assessment use of RWD for RWE highlighted at ISPOR 2022, Vienna

EHDEN colleagues were very active at  one of the key Health Economics and Outcomes Research (HEOR)conferences in Europe, The Professional Society for Health Economics and Outcomes Research (ISPOR) European meeting, held in Vienna, 6-9th November 2022, the first in-person in Europe since 2019. Within the domain of Health Technology Assessment (HTA), our colleagues in work … Read more

Regulators are formally adopting real world evidence, when will health technology assessment?

On Monday 31st October, NICE hosted a virtual workshop entitled ‘Regulators are formally adopting real world evidence, when will health technology assessment?’. It was organised as part of our work within the Innovative Medicines Initiative grant-funded project European Health Data & Evidence Network (EHDEN), in collaboration with GetReal Institute. The half-day workshop, moderated by Dr … Read more