COVID-19 was declared a pandemic by the WHO in March of 2020 and EHDEN was formally launched in November 2018. With a solid foundation of Data Partners in place by early 2020, and since then, EHDEN has been collaborating with OHDSI (Observational Health Data Science and Informatics), our growing base of Data Partners, and other … Read more
5th October 2022, Brussels, Belgium: Working with real word data is not just about the data itself, nor only technical, methodological, or platform aspects, but also governance, ethical and legal compliance. Ensuring citizen or patient protection, privacy and meeting legal requirements are critical elements, requiring trust, trustworthiness and reliance on appropriate systems and appropriate involvement … Read more
See also the accompanying article in Uppsala Reports here. The week of 5 September had more than thirty colleagues from the Uppsala Monitoring Centre (UMC), EHDEN, DARWIN EU, and EHDEN Data Partners come together in Uppsala, Sweden to take part in the UMC/EHDEN pharmacovigilance evidence-a-thon. The specific objective of this IMI EHDEN-sponsored event was to … Read more
EHDEN Launches the 7th, final, Open Call for European Data Partners aiming to receive funding and support in mapping their healthcare data to the OMOP common data model – with EUR1 million budget, in partnership with Health Data Research UK (supporting UK applicants), with up to GBP300,000. 3rd October 2022, Brussels, Belgium: The EHDEN Consortium … Read more
Before I share details about GetReal, let me first outline our evolution. The GetReal Institute was established as an independent and sustainable continuation of two Innovative Medicines Initiative (IMI) projects. IMI GetReal ran between 2013 and 2017 with a focus on bringing together stakeholder groups to develop new tools and resources for incorporating real world … Read more
27th September 2022, Brussels, Belgium: Following the closure of its fourth and final call, which ran from 15 March – 16 April 2022, EHDEN is proud to welcome 17 newly certified Small-to-Medium-sized Enterprises (SMEs) to join us in the EHDEN journey. This expands the SME Catalogue with the 47 SMEs from the prior three calls, … Read more
With module 3 now posted, EHDEN (European Health Data & Evidence Network), together with the European Patients’ Forum, has completed its initial series of easy-to-understand, animated courses for non-experts as part of the EHDEN Academy course offering. These three introductory courses are designed to familiarise non-experts with the basics of health data in terms … Read more
Brussels, Belgium, 5th September 2022: We are delighted to announce and celebrate the special award from the International Society of Pharmacoepidemiology (ISPE) for recognisable and impactful contributions to public health during the COVID-19 pandemic awarded to Prof Dani Prieto-Alhambra, EHDEN’s Research Coordinator, Professor of Pharmaco and Device Epidemiology, NDORMS, University of Oxford, and Professor, Real … Read more
Brussels, Belgium, 1st September 2022: EHDEN is delighted to announce that Lundbeck has become a Partner of the EHDEN Consortium. They now join the 11 Public Partners, and 12 Industry Partners, adding their expertise, resources, and support in creating an ecosystem for working with real world data across Europe. The private-public partnership is building a large-scale, … Read more
The OHDSI Europe Symposium 2022 (24-26 June) kicked off aboard the majestic transatlantic ship: the SS Rotterdam (moored permanently on the Meuse river in Rotterdam). It was a very anticipated and successful event in many respects, so I thought it would be worthwhile to reflect on what made this one so special. This was actually … Read more