In the EHDEN project, sustainability and outreach were inherent in its design in Work Package 6 (WP6) right from the very beginning, which differentiated it from many other IMI projects. We always considered EHDEN to be a start-up within IMI with a post-project future, rather than having a project mentality with a start, middle and … Read more
Open science is playing an increasingly important role in our rapidly changing world. Open science, as defined by the OECD, makes the primary outputs of publicly funded research results – publications and research data – publicly accessible in digital format with no or minimal restriction. It’s also about ensuring the principles of openness extend to … Read more
With the European Health Evidence & Data Network (EHDEN) now in its third year, efforts are more than ever being focused on the second “E” – generating evidence. After its first successful “evidence-a-thon” or e-thon held in July 2021, a second e-thon with five EHDEN Data Partners (DPs) – CPRD, ULSM, FIIBAP, MEDAMAN and IU … Read more
We at EHDEN hope that you had a recuperative break at the end of 2021, start of 2022, but of course this is well in the rear view mirror as we are already close to the end of January. The project is already of course well immersed in our plans for the coming year, in … Read more
The EHDEN project Consortium, like everyone, is looking forward to a recuperative and hopefully safe break over the festive season in Europe, and wishes the same for all our colleagues and partners, too. It has been a hard year, against a backdrop of a continuing COVID-19 pandemic and now the rise of the Omicron SARS-COV-2 … Read more
A recent survey in England indicated that, during the COVID-19 pandemic, the public had learned more about how real world data (RWD) can be used both for monitoring public health and for research. Words such as epidemiology and vaccine effectiveness now trip off the tongue and are no longer the preserve of scientists. From society’s … Read more
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
The balance to be met is to keep data closed enough for citizen protection, but open enough for research. This means achieving an ethical balance, avoiding any harm to the patient, while doing societal good in research. The use of federated data networks, such as EHDEN, implicitly protect patient data by keeping data local, behind local firewalls and approval processes, inclusive of local consent requirements, whilst aggregating population-level information, not patient-level data from analysis. This is privacy by design.