Under the “All Aboard!” banner, the OHDSI Europe Symposium 2022 was launched on the majestic SS Rotterdam, which ran from 24 – 26 June in Rotterdam, the Netherlands. The event saw 350 participants come together from across Europe and globally. The Symposium brought together not only EHDEN/OHDSI colleagues and others working in the real … Read more
24 June 2022, Rotterdam, the Netherlands: The European Health Data & Evidence Network (EHDEN) is an IMI (Innovative Medicines Initiative) programme well into its fourth year. Its goal is to maximise the transformational potential of real world data/real world evidence at scale to facilitate standardised and faster observational research that improves insights in disease, treatment … Read more
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
The balance to be met is to keep data closed enough for citizen protection, but open enough for research. This means achieving an ethical balance, avoiding any harm to the patient, while doing societal good in research. The use of federated data networks, such as EHDEN, implicitly protect patient data by keeping data local, behind local firewalls and approval processes, inclusive of local consent requirements, whilst aggregating population-level information, not patient-level data from analysis. This is privacy by design.