EHDEN is pleased to be over half-way in its IMI project phase and to be working with such an extensive network of Data Partners (DPs) and Small-to- Medium Enterprises (SMEs) across the European region. With a strong foundation of 98 DPs and 46 SMEs certified or in the process of certification across 23 countries, EHDEN … Read more
Brussels, Belgium, 27 July 2021: EHDEN is delighted to announce that Boehringer Ingelheim has today become a Partner of the EHDEN Consortium. They now join the 11 Public Partners, and 11 Industry Partners, adding their expertise, resources, and support in creating an ecosystem for working with real-world data across the European region via a federated … Read more
Part 3 of the chronicle looks at progress to date since the initial call; here are Part 1 and Part 2. While an increasing number of people across Europe have been vaccinated, but are still under the threat of emerging COVID-19 variants, the battle to win the fight against the pandemic continues. To help provide … Read more
No one is big enough alone to master the complex future. Curious minds could help here in learning from others and building on accomplished work. It seems that even politicians and decision makers are sharing the same mindset: bringing in more cohesion and bridging different aspirations together is the efficient way forward. Ecosystems and collaboration are the keys for sustainable future despite of the differences.
Sulev Reisberg University of Tartu Introduce yourself and the University of Tartu? The University of Tartu, founded in 1632, is the national university of Estonia, the only classical university in the country, and also the biggest and most prestigious one in Estonia. The Institute of Computer Science, where I am coming from, is one of … Read more
The EHDEN Consortium is pleased to announce that a total of 41 data partners have been selected in our latest open call for data partners. Having received a total of 55 eligible applications, these 41 applications were selected by the EHDEN Data Source Prioritisation Committee. Combined, the 41 selected data partners represent over 78 million … Read more
Antje Hottgenroth Lilly Introduce yourself and Lilly? Eli Lilly and Company is a global healthcare leader that unites caring with discovery to create medicines that make life better for people around the world. We were founded more than a century ago by a man committed to creating high-quality medicines that meet real needs, and today … Read more
The balance to be met is to keep data closed enough for citizen protection, but open enough for research. This means achieving an ethical balance, avoiding any harm to the patient, while doing societal good in research. The use of federated data networks, such as EHDEN, implicitly protect patient data by keeping data local, behind local firewalls and approval processes, inclusive of local consent requirements, whilst aggregating population-level information, not patient-level data from analysis. This is privacy by design.
The largest, most extensive global network study on background rates for adverse events of special interest identifies important age, sex and database differences that should inform future safety surveillance efforts. COVID vaccine surveillance efforts are a global priority, but safety monitoring for vaccines should not reflect a single global population. The largest international network study … Read more
Between April 15th and May 13th, the EHDEN consortium held its fourth open call for Data Partners. We are delighted to announce that the response to our call has exceeded our expectations as 55 data partners applied. These applicants represent over 80 million patient records and cover 20 different countries throughout Europe, offering a diverse … Read more