EHDEN expands its federated network by 50% adding 49 new Data Partners, reaching a total of 143 Data Partners in 27 countries

The EHDEN Consortium is exceptionally pleased to announce that a total of 49 applicants have been selected from 17 countries in our latest fifth open call for Data Partners. Having received a total of 90 eligible applications, these 49 applications were selected by the EHDEN Data Source Prioritisation Committee (DPSC) in our largest response to date.

Combined, the selected data partners represent almost 60 million patient records, originating from various care settings, adding to the approximate 450 million records in our network currently. Four Data Partners were from prior calls, extending their mapping in this Call#5 (and not including their record count again).

This open call had a focus on countries minimally represented in the current EHDEN network, and with this current call, we now have Data Partners in four new countries: Czech Republic, Republic of Ireland, Lithuania and Montenegro. Secondly, the specific immunology and oncology focus was a huge success with 11 new Data Partners having a focus on oncology, while we also welcome several new Data Partners with a focus in Rheumatology and Rare Diseases. EHDEN looks forward to all the new Data Partners joining with the 98 Data Partners across the 23 countries from our prior four calls.

We will now be initiating the process of signing a sub-grant agreement with these new Data Partners while in parallel a work plan will be worked out and linkage to one of the EHDEN-certified SMEs will be initiated. We anticipate that the first mappings will start in the spring.

If you are interested in applying to a future call, then follow us via our website, social media channels or subscribe to our mailing list to stay up to date on all upcoming, final open calls in 2022. More information about the Data Partner Calls can be found here.

Below is the list of Data Partners, grouped per country:

  • Austria
    • Medical University of Vienna
    • syndena
  • Belgium
    • Universitaire Ziekenhuizen KU Leuven
    • AZ Damiaan Oostende
    • AZ Maria Middelares
    • Icometrix NV
  • Croatia
    • MCS Grupa d.o.o. & Health Care Center of Primorje-Gorski Kotar County
  • Czech Republic
    • Institute of Rheumatology/ATTRA Registry
    • OAKS Consulting s.r.o.
  • Finland
    • Joint Authority Hospital District of Helsinki and Uusimaa, HUS*
    • Turku Urology Research Unit (Prostate Cancer Registry of South West Finland)*
    • Finnish Institute for Health and Welfare (THL)
  • France
    • Health Data Hub, Plateforme des Données de Santé*
  • Germany
    • Krebsregister Rheinland-Pfalz
    • University of Ulm, ZIBMT
    • Heidelberg Universitätsklinikum, European Rare Kidney Disease Registry (ERKReg)
  • Israel
    • Obstetrics and Gynecology Department, Hadassah Mt. Scopus - Hebrew University Medical Center
  • Italy
    • University Hospital of Parma
    • ASL Roma 1
    • Casa di Cura Privata del Policlinico (CCPP)
    • UOC di Endocrinologia
    • Fondazione IRCCS Istituto Neurologico Carlo Biesta*
    • Basilicata Cancer Registry
    • AO Card. G. Panico - Center for Neurodegenerative Diseases and Aging Brain
    • Grande Ospedale Metropolitano "Bianchi-Melacrino-Morelli"
    • IRCCS Azienda Ospedaliero-Universitaria di Bologna Policlinico di Sant'Orsola
    • Fondazione Toscana Gabriele Monasterio per la Ricerca Medica e di Santa Publica (FTGM)
  • Lithuania
    • Hospital of Lithuanian University of Health Sciences Kauno Klinikos
  • Montenegro
    • Clinical Center of Montenegro
  • The Netherlands
    • Equipe Zorgbedrijven Nederland B.V. (Inc)
  • Norway
    • Oslo University Hospital (National Cancer Registry)
  • Portugal
    • Registo Portugues de Doentes Reumaticos
    • Secretaria Regional da Saude de Desporto - Regiao Autonoma dos Acores
    • Instituto de Medicina Molecular João Lobo Antunes (iMM)
    • José de Mello Saúde S.A. (CUF)
    • Unidade Local de Saúde de Matosinhos
    • Hospital do Espírito Santo de Évora
  • Republic of Ireland
    • Trinity St James’s Cancer Institute
  • Spain
    • Virgen Macarena University Hospital
    • Consellería de Sanidade
    • Fundación para la Investigación del Hospital Clínico de la Comunidad Valenciana, Fundación INCLIVA
    • Fundació Institut d´Investigació Sanitària Illes Balears
    • Healthcare Service of the Principality of Asturias
    • Instituto Aragonés de Ciencias de la Salud (IACS)
    • Institut Català d'Oncologia
    • Consorci Corporació Sanitària Parc Taulí
    • Research Institute - Hospital de la Santa Creu i Sant Pau


    • Institute of Social and Preventive Medicine, University of Bern

*already a Data Partner from prior Calls, now extending their CDM mapping