Under the banner: “Unleashing the potential of data to improve cancer care”, the European Federation of Pharmaceutical Industries and Associations (EFPIA) held an Oncology Data Summit on 18 June in Brussels, Belgium. A broad spectrum of more than 170 stakeholders were present to hear and participate in a dynamic range of presentations and panel discussions.
Nigel Hughes, Janssen Clinical Innovation Scientific Director – Patient Data for Research, Janssen R&D, and Co-Lead of the European Health Data & Evidence Network (EHDEN) took part in a panel discussion that addressed the important role of standards and infrastructure in building health data sharing networks.
EHDEN’s mission is to develop a federated network, standardised to a common data model (OMOP) that more smartly manages and shares research methodologies, and expands education in open science and collaboration.
“Whether it’s a disease-agnostic initiative such as EHDEN or a haematology-specific initiative such as the IMI2/Big Data For Better Outcomes’ HARMONY , it’s clear that we all share a common objective and that collaboration is one of the most important principles that will help us unleash the potential of data to improve patient care,” noted Nigel Hughes.
“With this in mind, and regardless of your role,” he added, “I encourage everyone to act as ambassadors. By working together, our collective voices can help spread the word about the importance of liberating real world data to ultimately improve outcomes – and help establish 21st century tools for 21st century research.”
Check EFPIA’s site to view all presentations and poll results.