Dr. Jacoline Bouvy
Senior Scientific Adviser
National Institute for Health and Care Excellence (UK)
Please introduce yourself and your institution:
I’m Jacoline Bouvy and I work as a Senior Scientific Adviser in the Science Policy and Research Programme at the National Institute for Health and Care Excellence (NICE), based in London. I am a health economist specialising in the interface between marketing authorisation and health technology assessment (HTA) of drugs. In the last few years, I’ve been involved in several IMI projects: ADAPT-SMART, ROADMAP, and I’m currently working on Neuronet and EHDEN.
NICE provides national guidance and advice to improve health and social care in England. NICE is a non-departmental public body, which means that we are accountable to our sponsor department (the Department of Health and Social Care) but operationally we are independent of government.
NICE produces evidence-based guidance and advice for health, public health, and social care practitioners. This includes NICE Guidelines that make evidence-based recommendations on a wide range of topics, but also technology appraisals that assess the clinical and cost-effectiveness of health technologies.
In terms of the EHDEN stakeholder community, NICE is a ‘HTA body’.
What is your role in EHDEN and what do you personally hope to get out of EHDEN?
I’m the co-lead for EHDEN Work Package 2 and I’m also involved in a bunch of other EHDEN work packages. Personally, I hope that EHDEN manages to bring together a diverse set of stakeholders who will see the value of a federated data network for generating the evidence they need to inform the work they do. I find it very exciting to be part of such an ambitious project that can end up making a real difference in Europe. We hope that we can ensure that the EHDEN platform will be able to generate meaningful evidence for HTA purposes.
What would you consider success at the end of EHDEN?
A federated network of data sources that enables the generation of high-quality real-word evidence. The EHDEN platform will, if successful, allow collaboration on studies across settings and countries which now is much more complicated. I hope that the open science, collaborative spirit of EHDEN will set the standard for how large-scale federated networks operate to generate meaningful outcomes.