Concepts like real world data, federated data networks, and common data models can be challenging for non-experts to understand. To this end, the European Patients’ Forum (EPF) and EHDEN collaborated to create three introductory modules that aim to provide non-experts, particularly patients and citizens, with the knowledge they need to understand these terms. They will cover how patients can play a vital role in the healthcare ecosystem and health research, data privacy, and most importantly, how healthcare research benefits patients and improves outcomes.
Module 1 was launched in December 2021, and covers an introduction to real world health data, and real world evidence, what they are and how they are used.
Module 2 is now available and is part of the free, online EHDEN Academy curriculum. This introductory course is designed to familiarise non-experts with the basics of how standardised data is managed across a federated network, and the benefits of doing this on a large scale. The key concepts covered in this module include what are federated data networks and related concepts, as well as the OMOP common data model.
These courses use animated content and easy-to-understand examples to illustrate how the EHDEN project is employing such a structure to maximise the value of secure health data and ultimately improve patient treatment and outcomes. You can view either of the first two modules, by going to the EHDEN Academy and setting up a free account, and enrolling on the course.
And be sure to keep an eye out for Module 3, which will focus on the General Data Protection Regulation (GDPR) and measures taken to ensure data privacy.