EHDEN Legal Entity

Following a fabulous foundation, the European Health Data & Evidence Network creates a new legal entity!

We are proud of the progress of the project to date, achieving beyond our original aims in the build of the Data Partner network, infrastructure development, evidence generation, and education by our midpoint. EHDEN has created a growing network currently consisting 98 Data Partners in 23 countries across the European region, with greater than 400 million health records being harmonised to the OMOP common data model. Meanwhile, by the end of this year, 49 small-to-medium-sized enterprises (SMEs) will have been trained across 23 countries, certified and then working with Data Partners on a consistent data harmonisation process of their source data.

Our evidence-generation work is accelerating, in part due to the COVID-19 pandemic, and we have contributed to 36 publications to date, with increasing scientific exposure through international meetings and via OHDSI. The EHDEN Academy has supported over 1500 participants with its courses since its launch, and we continue to expand our educational activities, also via the OHDSI Education Working Group.

In the remainder of the project, we want to consolidate on these achievements and further expand both our network as well as evidence generation. Our vision remains a Europe where harmonised real-world data is used by the healthcare community to more rapidly generate high quality insights that improve outcomes for patients, revolutionising how treatment and care are implemented and evaluated.

Building on EHDEN’s foundation, a new legal entity is being launched as a not-for-profit incorporated in The Netherlands, that will transition the project into a long-term, sustainable operation from 2024. It will facilitate the developing ecosystem, operationalising the research operating model post project, working in parallel on the transition and cross-fade between the project and the legal entity. As a sustainable entity it will service research in the EHDEN network and wider research community, supporting studies, study-a-thons, methodological and technical developments, and research programmes.

Watch this space for further updates as we launch the legal entity and develop our sustainability path beyond the original EHDEN project, and we look forward to collaborating with many of you in doing so.