Webinars, podcasts, and more

During the EHDEN project phase, a rich library of educational content was created to support the community in adopting the OMOP Common Data Model, improving data quality, and advancing real‑world evidence generation. In this section, we highlight a curated selection of those webinars, podcasts, interviews, and training sessions that remain highly valuable today. These resources continue to offer practical guidance and expert insight for anyone working within the real-world evidence using the OMOP CDM ecosystem.

Webinars

Introduction to EHDEN - the project: Data Saves Lives Coffee Talk (short intro to the project)

During this "Data Saves Lives' coffee talk, Nigel Hughes introduces you to the EHDEN project and updates you on our achievements to date.

Determining value for patients and harnessing RWE (October 2020)

The early assessment of new products is increasingly accompanied by smaller datasets that are often extrapolated for outcomes and survival. This creates enormous challenges for Europe’s HTA bodies, which need to assess these new treatments based on limited quantities of long-term outcomes data. This session explores how EHDEN can function as a platform to capture longer-term outcomes data and provide alternative reimbursement and assessment approaches to facilitate comparative effectiveness measures.

Evidence generation for HTA: what role for the OMOP Common Data Model and EHDEN? (January 2020)

Most countries in Europe have formal #health technology assessment processes to inform clinical practice and/or the coverage and reimbursement of new medical technologies. Some bodies focus on the relative effectiveness of technologies, while others additionally assess #cost-effectiveness. Because HTA bodies are typically interested in the long-term (usually lifetime) impact of technologies in clinical practice, clinical trials alone are not sufficient to inform decisions, and modelling is often required.

Study-a-thon: From question to publication in 5 days (March 2019)

Kees van Bochove (TheHyve) and Daniel-Prieto Alhambra (University of Oxford) discuss the EHDEN and OHDSI Study-a-thon which was organized at the University of Oxford in December 2018. They explain the concept of this 5-day meeting and how they were able to go from question, to cohort characterization, to data analysis and ultimately to evidence generation in only 5 days.

Blog posts

Podcasts

European Patients' Podcast - All about EHDEN Mini Series, Part 1: Intro to EHDEN

Peter Rjinbeek explains the basics of health data, how health data is used today, how to maximise its potential, and the EHDEN project. Listen to this episode.

Ethical, Legal & Social Implications Episode #2: Exploring the concept of trust and health data with Dr Mackenzie Graham

We explore what is meant by, 'trust', and also trustworthiness, and reliance on appropriate governance systems to support individuals and patients being confident in who and how they can trust. Within this we investigate underlying concepts that result in trust, what it is and what it takes for trust and trustworthiness, such as motives and prior experience, very much within a motivation-based model. Listen to this episode.

Ethical, Legal & Social Implications #1: The Concentric Circles Framework and working with health data through federated data networks

The closer a researcher is to the subject in the model, the greater granularity and need for protection of the subject (compliance with law, privacy and confidentiality), whereas the further out, the data is often less granular, with less protections. It may be in the future that metadata will contain such relevant information to aid a researcher in understanding both the constraints on the use of health data, and their responsibilities in using it. Listen to this episode.

Using EHDEN to Determine Value for Patients (October 2020)

How can a federated data model help HTAs determine value for patients and healthcare systems? In this podcast we discuss these challenges with Jacoline Bouvy (National Institute for Health and Care Excellence, NICE). Listen to this episode.

Voice of EHDEN Episode #1 - Global open science and observational research: a conversation with international thought leader, Patrick Ryan, OHDSI & Janssen

In our first episode of season one, Patrick Ryan, PhD, VP Observational Health Data Analytics, Janssen R&D, Assistant Professor, Adjunct; Department of Biomedical Informatics, Columbia University Medical Center, and founding member of Observational Health Data Sciences & Informatics (OHDSI) joins us to discuss the last decade of OHDSI's and now EHDEN's methodological and tool development. Listen to this episode.

Voice of EHDEN Episode #7 - The intricacies of data quality, the Data Quality Dashboard, and a new sub-specialty focus on data quality: a discussion with Clair Blacketer

In this episode we discuss a definition of data quality and some of the inherent challenges with real world data quality with Clair Blacketer, Janssen Epidemiology, OHDSI and Erasmus MC. Clair describes the work she and colleagues have been engaged in on the development of a criteria-driven Data Quality Dashboard (DQD). Listen to this episode.

Voice of EHDEN Episode #8 - Using historical data to predict patients' future outcomes and exciting times for predictive, federated modelling with Peter Rijnbeek

In this episode, we explore developments in predictive modelling and its growing impact in research and for clinical practice, with a focus on methodology, quality and lessons learned. Our guest in this episode is Peter Rijnbeek, Assoc Prof, Health Data Sciences at Erasmus MC, Rotterdam. Listen to this episode.

Voice of EHDEN Episode #1/Season 2 - Health Technology Assessment (HTA), RWD/RWE and EHDEN: enhancing methods, learning and the evaluation of therapeutics with Dalia Dawoud and Eline van Overbeeke

We discuss Health Technology Assessment, a multidisciplinary, transparent process for evaluating therapeutic agents and technologies in terms of efficacy and value in treating the indicated population, within the wider context of a country's healthcare system. Joining us to discuss this is Dalia Dawoud, Senior Scientific Advisor at NICE, the National Institute for for Health and Care Excellence in London, and Eline van Overbeeke, Health Economics and Outcomes Research Manager, Pfizer. Listen to this episode.